The World Fragile X Awareness Day is marked on 22 July every year to celebrate families impacted by Fragile X and highlight the progress of research to find a cure. On this day, communities around the world come together to shine a light on Fragile X, by illuminating monuments and landmarks globally. World Fragile X Day celebrates families impacted by Fragile X and highlights advancements of research to find effective treatments and ultimately a cure.
About the Fragile X syndrome:
About the FRAXA Research Foundation:
The FRAXA Research Foundation, which Clapp and her husband Michael Tranfaglia, MD, officially launched in 1994, has invested well over $32 million in more than 600 scientific grants in 19 countries. The World Fragile X Day was initiated by the US-based FRAXA Research Foundation.