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World Fragile X Awareness Day 2022: 22 July

World Fragile X Awareness Day 2022: 22 July_50.1

The World Fragile X Awareness Day is marked on 22 July every year to celebrate families impacted by Fragile X and highlight the progress of research to find a cure. On this day, communities around the world come together to shine a light on Fragile X, by illuminating monuments and landmarks globally. World Fragile X Day celebrates families impacted by Fragile X and highlights advancements of research to find effective treatments and ultimately a cure.

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About the Fragile X syndrome:

Fragile X syndrome causes mild to severe intellectual disability. It affects both males and females, but females usually have milder symptoms. Symptoms include delays in talking, anxiety and hyperactive behaviour. Some people have seizures. Physical features might include large ears, a long face, a prominent jaw and forehead and flat feet. Therapy can be used to treat learning disabilities. Medication may be used to treat anxiety and mood disorders.

About the FRAXA Research Foundation:

The FRAXA Research Foundation, which Clapp and her husband Michael Tranfaglia, MD, officially launched in 1994, has invested well over $32 million in more than 600 scientific grants in 19 countries. The World Fragile X Day was initiated by the US-based FRAXA Research Foundation.

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