Union Health Minister Dr. Harsh Vardhan has approved National Policy for Rare Diseases, 2021. The policy aims to lower the high cost of treatment for rare diseases, with an increased focus on indigenous research & local production of medicines. The Policy also focuses on early screening and prevention through primary and secondary health care infrastructure such as Health and Wellness Centres and District Early Intervention Centres.
A provision for financial support up to Rs.20 lakh under the Umbrella Scheme of Rashtriya Arogya Nidhi is proposed for treatment of those rare diseases that require a one-time treatment (diseases listed under Group 1 in the policy). Benefits to be extended to about 40% of the population eligible under PM Jan Arogya Yojana.